EXPERIÊNCIAS VIVIDAS POR PROFISSIONAIS NO PROCESSO DE TRABALHO COM CRIANÇAS EM CUIDADOS PALIATIVOS.

Abstract

Pediatric Palliative Care (CPP) includes total pediatric care in the body, mind and soul, and family support. Tending its onset when a serious illness is diagnosed and continues to be a curatorial cure process. They are based on multiprofessionality and interdisciplinarity focused on evaluating and alleviating the physical, psychological, social and spiritual exercise of the child and his / her family. The objective was to understand the experiences experienced by professionals in the process of working with children in palliative care. This is an exploratory study of a qualitative approach of the phenomenological type, carried out in a university hospital from March to May 2018. The sample was chosen with the intention of involving 32 professionals from the research sector. The analysis of the ideas was carried out in search of the work process in health, contemplating like Van Manen visions. The themes that emerged were: Fragilities, disagreements and contradictions in the presentation and offer of palliative care and facilitating initiatives in palliative practice. The understanding of the lived experiences made possible the understanding of a knowledge about the association of concepts and contradictions in palliative care. Palliative Care was introduced in a terminality, to abandonment and euthanasia. Where an denial of the natural process of death prosers, it may result in the adoption of a futile treatment. The occurrence of the biomedical model and the fragmentation of care that led, in some situations, to the work process, was adopted for decision making and for the child and his family. However, as experiences have already been promoted by the integration of knowledge, and the incorporation of new tools in daily care, which promote a user-centered approach with respect to their subjectivity. It is necessary, changes in the logic of the work processes in health, in search of a collaborative work, with emphasis on the protagonism of the user, valorization of the worker and extension of the clinic.